Showing posts with label mental illness. Show all posts
Showing posts with label mental illness. Show all posts

Monday, September 21, 2009

Yo, Joey P.

I logged onto Joe Pantoliano’s website tonight called “No Kidding, Me Too!” I really liked what I saw especially their slogan “Stomp Out the Stigma.” I perused the site, found lots of cool things, and read their mission statement. It reads in part:
“No Kidding, Me Too! is an organization whose purpose is to remove the stigma attached to brain dis-ease through education and the breaking down of societal barriers. Our goal is to empower those with brain dis-ease to admit their illness, seek treatment, and become even greater members of society.”
Could it be? Have I lived to finally see people with some clout taking up the banner of mental illness awareness? I especially like the line “…to admit their illness (italics added by me)” To admit their illness…wow. That’s powerful for unchosens like me. It’s all I ever wanted from and for my mom; to admit she had a problem. To then finish whatever treatment her psych wanted her to do…to not doctor shop…to learn that she is a human being of unlimited potential.
I am all for organizations stomping out stigma. But, and this is me so there is always a but, it needs to be a family issue, not an individual issue. There needs to be open and honest dialogue about what it’s like to have a mentally ill parent. Unchosens need to be given the chance to tell others what we live with; the fear that at any moment our parent will snap and be taken away to the psych ward…the parental roles we assume for our ill parent…the double lives we lead, putting on a show for the outside world because to tell anyone that we are abused or neglected means WE get lectured. We get lectured that we have to understand our parent is ill (yeah that’s not a tough thing to understand when your mom freaks out over vacuum lines in the carpet), that they can’t help it when they hit/punch/spit on us/or call us names.
My mom may not, in fact, be able to control what she does. I believe that, that there are times she can’t control herself. But when all you tell a child is that we shouldn’t take it personally, that our parent can’t help it, and you offer us no solace or hugs, no words telling us “your mom is ill. It isn’t right what she did” you are showing us that we deserve this abuse. And that’s what it is, mental illness or not-abuse.
No one wants to talk about the fact that some mentally ill parents are abusive yet everyone wants to get rid of the stigma. The only way the stigma can be erased is to have an open dialogue about all facets of mental illness. No more sanitization or minimizing about the impact a parent’s mental illness has on a child. This means no looking away from an unchosen when we speak, no taking the mic from us at support group meetings when we say we are so tired, and just want a break or that we no longer want our parent in our lives. Yes, this has happened to me. I was told to come back when I could be more compassionate towards my mom.
Funny how I lived with a woman who showed me no compassion…saw family therapists who had no compassion for myself or my sibs...in short I was never shown what compassion was but if I wanted “support” I damn well better learn what it was or else. Sometimes I wonder if these support groups have a secret store or something, they are always telling you to get something-compassion, awareness, patience, like we can just go out and find it at K Mart.
“Blue light special in aisle 5….compassion for your mentally ill, abusive parent. Industrial size, buy one get one half off”

Only when people such as myself or my siblings can openly and honestly talk about the fear and anger we grew up with and not get shut down or silenced will the stigma of mental illness be gone. The stigma will not end without unchosen participation. To think it can is an illusion.
I applaud what Mr. Pantoliano is doing. It gives me hope. The organization he started is well on it’s way to stomping out stigma. Let’s hope in the future he and others can stomp out the stigma that children of the mentally ill don’t matter

Wednesday, March 25, 2009

Dr, Drew, Nadya Suleman, and BPD

I watched an interesting interview today with the anchor of Showbiz tonight and Dr. Drew Pinksy. Nadya Suleman isn't addicted to fame, she's addicted to herself!
Here ya go-



I admit to being a little stunned that someone is finally saying the words that Dr. Phil was too chicken to say. It still shocks me when BPD is mentioned in the media. What doesn't shock me is that Ms. Suleman is finally being called out for her narcissism. I don't know if she has BPD but I can say she certainly has some traits of that and/or Narcissistic Personality Disorder.
First, has anyone else noticed the ages of her 6 other kids? The kids are ages 7, 6, 5, 3 and twin 2 year olds. Anyone else notice a pattern here? She had another baby each time the previous one started showing the natural inclination of becoming independent and separating from mom. People with NPD or BPD don't see their children as separate human beings. These parents are not able to separate their child from their own selves. While most moms with a PD don't go on to have 14 kids, a lot of moms with a PD do go on to have more children than they can care for (financially, emotionally, etc.) in order to get their own needs met. As soon as one child becomes independent they have/adopt another.
I think that's a big part of Nadya's problem. She has spoken about the feelings of loneliness she experienced as a child. She's using these kids to fill a decades old void. It's as if she thinks these kids can go back in time and heal her hurts. A lot of people do this altho not everyone that has kids in order to heal a hurt is mentally ill or has a PD. However, red flags start popping up with people like Ms. Suleman.
She has no job, and says she lives on student loans. She says she doesn't get welfare, but then admits she gets food stamps and assistance from the state because 2 of her kids have special needs. Yeah, Nadya-that's called welfare. When you can't financially take care of any aspect of your children's care and instead have to rely totally on the government, you're on welfare, baby.
That's the other thing that gets me. It's the sense of entitlement she has. That entitlement issue is a hallmark of PD behaviors. This woman feels entitled to collect children as if they were beanie babies! She takes entitlement to a whole new level when she has 8 children at once, knowing they would need special care. And yes, that's a given. The human body was not meant to give birth to litters. Did she think of that? Did she wonder how she would be able to love 14 children, and bond with 8 preemies? Nope. She just wanted the kids, got a good deal at the fertility clinic and figured what the hell, it's a 2 for 1 special.
This woman and my mother are so similiar it's spooky. Mom craves a attention, just like Nadya does. Mom preens for any camera, and Nadya alyways looks put together. No frazzled hair, no towels over the shouldrt, no bags under the eyes like every other mother of small children and newborns would look. What mother of 14 kids has time to prep like?! Oh wait...a mother who has other people caring for her kids.
Mom also has no impulse control whatsoever. It's pretty obvious how this lack of control manifested in Nady'a life.
Mom had and HAS no concept of money. Neither does Nadya. Nadya has already paraded them her children television and her video blog via radaronline.com. While I get it that she needs to make a living, that rationale is like saying the dynamite was there, so I had to blow up the building. This woman HAD a choice. She is continually choosing to sell her kids, plain and simple.
The saddest way mom and this are similiar is that neither should have had any kids at all. These children are here to serve their mom's emtional needs, as my sibling and I were. She can't possible bond with precious babies. That parental bond, whether mother or father, is so important. Unfortuantely for them their lives and independent selves do not count in Nadya's eyes. They have a role to play and Nadya will make sure they do no matter what the cost. This burden of being a parents ethereal dream is a heavy, heavy burden to bear. They are being set up to experience incredible amounts of chaos. Children who live in chaos CONTINUE TO CREATE CHAOS AS ADULTS. They also grow up parentified, angry, and at a high risk for drug and alcohol use. I pretty much went thru all of what I just typed so don't think I pulled that out of nowhere. I am speaking from experienc
Nadya is like a little girl trapped between the ages of 12-14. Little girls can't raise children! They can baby-sit but even then it's for short perioods of time. Many people with a PD are emotionally "stuck" at what was for them a traumatic age. Nadya likes the cute babies, seems reasonably responsible on the surface but...spend some time observing her and you realize her reasoning is flawed. It's the reasoning of a young girl, someone who doesn't have the ability see beyond tomorrow. As someone who was a young girl not so long ago, I can say that my reasoning at 12-14 was pretty much awful. I was like a butterfly, flitting to every new thing but never really finishing anything, not able to commit to a life changing event.
I feel for these kids. They are in for a nightmare and need all the prayes, hugs, and good thoughts we can send them.

Thursday, January 8, 2009

Thank you, Bill Gates

I recently attended the NEA BPD conference in MN. I was excited to meet some of the experts in the field and put a face to names I have read about for so long. A lot of the focus of the conference was on scientific research regarding the ins and out of BPD. How was it caused, what's the best treatment, etc.
What I didn't hear a lot of was separate children of Borderline's stories. It's something I am starting to notice a lot. I don't know-are people afraid of us or something? So much emphasis is put on the family aspect that too many professionals, IMO, arent' able to see the big picture. Children of the mentally ill are treated as if we are software, the Access application just standing by to run a query or form a report about our parent (thanks, Bill Gates). It offends me. We are more than that. We are more than collateral patients or collateral caregivers.
Yes, we are the ones who see what happens when meds aren't taken. We see our parent wishing to die, telling us how they want to die, and then 5 mins later telling us that no, they never said that. I know that my mom can't be trusted to give accurate info. I know that. I also know that in order to help her, the docs have to have the most accurate info they can get.
So here is what I propose-
1.Ask us if we are OK giving info, don't demand it because frankly, we don't owe you a thing.
2. Beyond emergency situations where drug allergies need to be known or something like that, give us the option of letting us either give the info to you then and there or maybe let us bring back a summary the next day because you know what? If we brought them in, chances are we've been dealing with their latest crisis for quite a while and would welcome a break.
3. If we refuse to give info you must respect that. So many of use have been interrogated by doctors and/or other mental health professionals who infer that somehow the latest crisis was our fault. An exmaple is a doc I once dealt with who was livid that I didn't monitor my mothers meds. I couldn't tell him when she had taken her last dose of Seroquel and he just lost it, sneering me and saying "how can I help her if you won't help me?" See what mean? From then on I couldn't do it anymore. I am not going to be put on the hook for my mom's own reckless actions.
4. When you find out mom has 12 different scripts from 7 different docs, plz don't take it out on me. I am as much in the dark as you are about her doctor shopping. I can't control her and if I could don't you think I would have by now?
5. Don't punish us for our parents behaviors. My mom may not always know what she is doing but that doesn't give anyone the right to blame me or my sibs. She may feel suicidal because the 3 of us chose NC, but she can also choose to call a crisis line or any other on call psych service she knows. If she doesn't call or ask for help then that is her choice and responsibility (or lack of it). When so called professionals take the options of getting better out of her hands, which means facing the reality she helped create rather than allowing her to blame others, and put them into mine; it keeps her ill.

What I am asking in a nutshell is this-don't assume I have the answers because if I did I would have fixed my parent a long time ago.